2-Year-Old Has Rare ‘Vanishing Bone’ DiseaseMarch 27, 2018 |
by WTVA News
An Ottawa County boy is battling a disease so rare, less than 300 cases have been reported in the entire world.
Two-year-old Leo Aguillon went to the doctor for pneumonia a couple weeks ago, but a chest x-ray and CT scan showed the unimaginable: half of the bones in his chest were gone.
“They found that his bones were basically not present,” said Leo’s dad Antonio Aguillon. “So he’s missing about half of his rib cage on the left side as well as the middle bone, which I think is called the sternum.”